So lately I keep running into this thing. I have a sleep disorder, a
circadian rhythm phase malfunction to be a bit more precise. In my case, it's right around six hours. My natural sleep phase is from four in the morning to noon.
A basic way to explain this is by contrasts. A normal human being, should they need to adjust their sleep schedule, will take no more than a week or two to do so; if someone needs to start getting up at six in the morning instead of seven, it should take only a few days of setting the alarm before the body gets used to the new demand and alters the sleeping pattern accordingly. They'll naturally fall asleep an hour earlier and wake an hour earlier. The same thing goes for working a regular night shift, the body has a few days of "what the hell?" and then slides into a new sleep phase. The brain adjusts.
My own brain does not have the ability to do this. Neurologically I simply lack the function.
When I regularly sleep from four to noon, I fall asleep naturally and wake well-rested and without discomfort. I suffer from no sleep deprivation, I generally find it easy to maintain a healthy weight, and I am in a good mood most of the time. If I get ill while allowed this sleep schedule, I recover quickly.
When I can not regularly sleep from four to noon--say, I'm taking a summer session class that requires me to be coherent at seven AM, or I am working a job that gives me morning shifts--I am consistently sleep deprived. I can not sleep until the early hours of the morning, and while I can wake to a persistent alarm I wake queasy every single day, unable to eat an early meal, and at around noon I begin to find it almost impossible to remain functional. My weight fluctuates rapidly; it becomes very hard for me to keep from being underweight, and I'm often depressed. And worst of all, I am sick more often than I am not. Until I finally figured out what was going on, I was sick every single two weeks, or three weeks at most. I was sick every three weeks for
fifteen years. Look back through the archives of my blog, and you'll see an endless round of "I have a cold, I have a fever, I've got the flu," over and over again.
This is a disorder that typically sets in in early teenhood, which makes it hard to diagnose. It struck me at the normal time, and everyone around me simply assumed I was hormonal; I had no knowledge by which I could disagree. And teenhood ended, eventually, and it didn't get better, but it was easy to say, I'm just depressed, life has been hard, it's complicated. I have insomnia. I'm just so lazy.
It wasn't until last year that I finally started to get what was wrong. And it wasn't until at most a year ago that I started truly and regularly allowing myself to sleep the way my brain needs it. I don't sleep more than eight hours, it's not a case of lying about all day. It's simply that I
must sleep a certain time, and there's no way to change it. If you peruse that Wiki article, you'll see--there's a long list of possible treatments, some of them quite nasty, and none of them have been shown to actually work for more than a couple of weeks.
Since I started sleeping from four AM to noon, from when I get sleepy to when I wake up naturally, I feel
good. I'm sick every two months at most. I am able to maintain a steady, healthy weight (provided I'm eating well enough, that's something else entirely). My mind is clear, and when I wake up I can have breakfast without wanting to vomit it all up again. I'm in a good mood! It's much harder to depress or anger or even irritate me.
But what I keep running into is this: I've been damn-near ebullient about finally understanding what is wrong, and about how much better I feel physically and mentally and emotionally since I started accepting and working with it. I'll laugh, saying "I've never felt this good in my life!" and people who know me, who have known me for years and should know better, keep suggesting that it would get better if only I tried to sleep at the same time every night. If I got a white-noise generator. If I got a better alarm clock. If I showed a little willpower. No matter how many times I try to explain it, there seems to be a fundamental lack of listening; everyone thinks that this is laziness, that this is me not trying, that this is just because I like being up late, because I'm a reader, because I watch movies. As if I haven't spent half my life trying to fix this, trying to go along with the way the rest of the world wakes and sleeps, desperately lying in bed counting breaths to a thousand every night, meditating in place of sleep because at least it means my body rests a bit.
Want to know a secret?
I fucking hate being up late. I hate being the only person awake for six hours of every night. I miss sunrises. I *desperately* miss, sometimes, the pre-sunrise desert and the larks singing out above the rocks, the green-blue-black gradient of the sky. I miss the cool of the morning before the sun hits, and I miss having lunch at noon, and I miss being able to eat breakfast at a restaurant that doesn't serve waffles 24 hours a day, and I would LOVE to be able to comfortably do any number of things that only occur in the early morning. And I can't, if I want to be stable and healthy and happy. I have to let all of those things go.
This will not get better. This is how it has been for more than half my life, and in all likelihood this is how it will be until the day I die. This sleep disorder, at my level, is classified as an actual disability. As in, if I had the funds to cover the somnologist and psychiatrist to determine on paper that this isn't simple insomnia, the government would pay me disability money, because I will never be able to healthily hold a normal job with this disorder. Ever. I have to choose between the average daytime working world and my entire health, and I'm tired of choosing the one that makes me constantly feel like shit. Imagine feeling nasty every single day. Imagine having to slog through sleep deprivation every single day, with no cessation in sight, not like having a goal you could point at and think "this week is hard, but I just have to get through this week." There's no getting through it, for me; this is not going to get better, and my brain will never adjust to a 'normal' sleep schedule.
So stop telling me how to fix it. Listen, when I say that I spent fifteen years trying. Hear it when I say that waking up hours after three alarms have screamed themselves to silence, or feeling like throwing up every single day for years, or passing out at random because my body just can't keep me upright anymore when it's been running on three hours of sleep a night for months straight, is the only way to go about a nine-to-five life for me. This is just the way it is. Life takes place after noon every day, and until four, and that's how it will be. And for the most part I am comfortable with that.
This entry was originally posted at
Dreamwidth.